Update 11/11/25: Trusting in the Unknown

Psalm 9:10 "And those who know Your name will put their trust in You, for You, O Lord, have not forsaken those who seek You."

I have wanted to give a quick update, but life has been crazy. I guess when you are planning a wedding in under 40 days, it can be chaotic. Miriam, Davis' mom, and I make a great team and all the plans are coming together. I figure that last few days before the wedding is when it will really hit.

Update Wayne:

Wayne is hanging in there, but he can feel himself getting weaker by the week. He told me today that PT today was a complete struggle. He keeps pushing though and wants to keep trying. Grace took him to the gym last week to walk, since she didn't want him falling in the neighborhood while he walked. He fell again, which made it 3 times in 7 days. The last three days he has had headaches and his good hand has had tremors. It is so hard not to read into things or to allow fear to fill my heart. Each new symptom and weakness in Wayne stirs so many different emotions. In those moments, I have to really just rest in what I know about God and trust Him.

 I'm so thankful that Davis and Grace decided to move their wedding up so he can walk her up the aisle. 18 more days!

Wayne looks so good, it is hard to believe sometimes that he has terminal brain cancer.

Shan had an appointment at Cincinnati Children's Hospital to start a medicine for his PIK3CA condition. We are hopeful that this medicine will help decrease the growth in his leg.

Baking sourdough bread has given me pleasure and helps with the stress...plus, Wayne loves it. I try to find little ways to make Wayne happy.

Joella and I enjoyed some fun activities today for her day off from school. We have been trying to find ways to relieve stress in our lives with all that is going on. Today was Hallmark and diamond art.

The other day our stress reliever was playing with my friend's puppies. Nothing like some puppy snuggles to take your mind off of life.

This past Saturday, some ladies from both our church and Grace's church threw Grace a bridal shower. It was such a blessing to have these amazing ladies step up and help us make Grace feel extra special before her wedding.

A few of the ladies that helped make this day happen!

Grace and I forgot to get a picture together at the shower, so we quickly snagged on at home. I love this girl and I'm so excited for her and Davis!

I thought that I would share this poem written by a woman in my GBM support group. It speaks so clearly of what we are experiencing right now. Below that is the third part of Wayne's sermon on 1 Peter.

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The Unseen Weight of the Caregiver

There is a silence that follows you when you become a caregiver—

not the peaceful kind, but the kind that echoes with the life you once had.

A life filled with movement, laughter, and plans, now replaced by the steady rhythm of duty.

You carry more than a body; you carry a whole world of fears and uncertainties.

You remember the person you loved as they were—

their voice, their spark, the way they filled a room.

And yet, the one beside you now is a different version,

fragile in body, dependent in ways you never imagined.

You mourn them while they are still here,

a grief with no funeral,

an ache that has no end date.

Friends drift away, not always out of cruelty,

but because your pain unsettles them,

reminding them of life’s fragility.

And in the quiet hours,

you wonder if the time you have left—

when this chapter closes—

will be enough to reclaim yourself.

Or if the “you” that once existed

has already faded beyond recognition.

You have been the “should” for so long—

the one who must be strong,

the one who must endure—

that you’ve almost forgotten what it feels like

to simply be.

This is the unseen weight you carry:

the exhaustion of the body,

the erosion of the self,

the love that holds you here,

and the quiet hope

that one day, you will find yourself again

By Penelope Moraitou "just a caregiver"

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Part 3 Wayne's Sermon: 1 Peter